Kintropy In Action: My Husband’s Irksome Habit

I’ve had a long day. We took the whole family to the mall. I had to take a nap when we got home. I kept wondering why then I remembered it wasn’t the walking it was the lugging the oxygen tank and other medical equipment around with us.

Robert my hero made dinner. Then we all went out again. We went to get Robert’s coffee, which is conveniently right next to a bookstore. So we got to feed both of our addictions.

Hannah was ecstatic getting to go out twice in a day is a real treat for her. (And me too)

We wound down for the night. Robert got Gabriel to bed while I took Hannah to her room for her nightly watching of Laurie Berkner. Once the nurse got here I snuck out to the family room to watch The Tudors with Robert , our version of a date.

Then I go to our room to get ready to sleep. I’ve been playing Cake Mania on my DS lately for brain clearing fun.

So I’m ready to go to sleep at 11:30pm. Robert walks in and the first thing he says "I’ve been reading an article that is disturbing." Apparently Texas, has the Texas Futile Care Law also known as the Advance Directives Act which gives "health care facility the right to discontinue life-sustaining treatment against the wishes of the patient or guardian ten days after giving written notice if the continuation of life-sustaining treatment is considered medically inappropriate by the treating medical team." (quote from: http://en.wikipedia.org/wiki/Texas_Futile_Care_Law)

He then begins to tell me the story of Emilio Gonzales and his family. How that it was decided without the parents consent to take the child off Life Support. With just ten days notice from the hospital.

For some reason I’m not ready to go back to sleep. This is not the first time. I love these conversations but, I really have troubles calming my brain down as it is. Then these happen and I’m lucky to get any sleep.

BEEP! BEEP! WHIRL! WHIRL!

WARNING I'm Jumping on a Soapbox Now

The following is not for humor seekers.......

I find the Texas thing horrifying. I understand the financial view but I DON’T agree that accountants or insurance agencies should be making medical decisions. If our health insurance company had it’s way our daughter would be in a nursing home. We would hardly know her and she wouldn’t have the attention that is helping her make the strides she is making everyday.

And a sub-note on the 10 days mailing thing. When our daughter was in the hospital I was lucky to get home from time to time let alone check the mail. I slept, bathed and ate when I got home that is about it.

Ok I’ll jump back off my soapbox now.