Perplexed
Well the ultrasound came up with nothing. According to the surgeon, nothing is going on with her ovary. This is a relief, but it begs the question. What is this behavior coming from and why is defecating such an issue for my daughter? The surgeon suspects that her tightening is gas pain and the lumps are all feces. The gastroenterologist didn't think the tightening had anything to do with her bowels. 
I need to talk to a dietitian for sure. I'm feeding her through her g-tube: Pedisure with fiber, prune juice and Activa. Plus she is taking senna for help with motility. The matter is soft enough when it comes out formed, but it collapses with the slightest pressure. We did try polyeth glycol with disastrous results we ended up with runny stool all day long that she could not even tell was coming out.
So I'm putting this out there. Has anyone else dealt with these issues? If you have any ideas let me know.
--Mom
