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Pain Management Follow Up

Last week, I took Hannah to see a children's rehab specialist.  She has great ideas for dealing with children who have low muscle tone.   I told her the drama we've been through.  She listened attentively.  She let me know that she found this issue important.  She agreed it was gas pain, and she actually offered some ideas to fix it.

She started by saying that we were on the right track with our formula concoction of prune juice, Activa and Pedisure with fiber.  She agreed that Miralax was a bad idea.  She wanted me to move the senna to a different time.  That night she wanted me to give Hannah an enema.  She was shocked in all my past medical experience with Hannah I had not given one yet.   So I found out that there are pediatric enema's available over the counter.  So cool.  

The next 5 nights she wants me to give Hannah a  pediatric glycerin suppository.  (I didn't even know there were pediatric suppositories I've been cutting up adult ones.)  She says the idea  is to clean her completely out and then train her to have movements the same time everyday.  

So far things are going well.  The night I did the enema she did not wake once screaming.  Usually, she cries about every 2 hours.   We all got a great deal of rest.   The next night she has some discomfort about 5 times and last night the timing was completely off.  She had a huge blowout at 3 in the morning.  

I feel relieved that we are working towards resolving this issue.

 

cartoonofdoctorhavinggoodidea

 

--Mom

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Comments

I have no advice at all to give, but I wanted to lend some moral support. We went through a constipation nightmare for the first seven years of our eldest son's life. Up to 8 or 9 days between movements. ER calls, MRI's, every medicine and technique they could think of. The kid enema definitely worked the best..the suppositories helped a little. Anyhow, we never got him to once a day, but this past year he's been every three or so days and things have gotten much easier. I think him getting physically bigger ultimately made the most difference.

Anyhow... that's a long way of saying that I know how frustrating and traumatic this kind of issue can be for everyone and I'm rooting for you guys that you're able to fine-tune a solution soon!

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